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Abstract Details

The Emerging Role of Digital Opinion Leaders in the Migraine Social Media Landscape
Headache
S35 - Hot Topics in Headache (2:48 PM-3:00 PM)
010
Despite the increasing impact of social media on communication of public health-related information, research on its influence, particularly in the context of migraine disease management, remains limited. This analysis characterizes the migraine social media landscape by examining migraine-related social posts of healthcare professionals (HCPs) with a large social media presence, referred to as DOLs.
To identify and describe the engagement activity of digital opinion leaders (DOLs) in migraine through analysis of social media posts.
The 30 most active and credible DOLs from July 2022 to June 2024 were identified based on ~636K migraine-related social media posts by HCPs out of ~23M total migraine-related posts in English across X, Facebook, Instagram, LinkedIn, TikTok, and YouTube. These DOLs were identified using MDigitalLife, a validated database of HCP social profiles mapped to National Provider Identifier numbers, followed by calculation of reach, relevance, and resonance using weighted influence scores. Natural language processing and independent analyst validation were leveraged to analyze engagement activity.

DOLs were most engaged with educational content on X around conferences and advocacy events, along with topics related to the migraine treatment landscape, latest research, and advocacy/awareness efforts. Three general behavioral patterns emerged when analyzing DOL engagement activity (N=22,397 posts):
1. Clinical Champions (60%): DOLs who discussed clinical advancements, trial results, and recognized colleagues.

2. Advocacy Allies (23%): DOLs who served as advocates for patients by sharing educational and awareness efforts among peers and patient communities.

3. Community Captains (17%): DOLs who acted as a bridge between patient, advocacy, and HCP communities by facilitating conversations, hosting collaborative events, and providing thought leadership.
For the first time, this analysis provides valuable insights on DOL engagement activity within the migraine social media landscape, underscoring the important role of DOLs in driving exchange of migraine research, awareness, education, and advocacy.
Authors/Disclosures
Teshamae Monteith, MD, FAAN (University of Miami)
PRESENTER 		Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Abbvie. Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving as a Consultant for American Headache Society . Dr. Monteith has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Pfizer. Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving as a Consultant for e-Neura. Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Abbvie. Dr. Monteith has received personal compensation in the range of $0-$499 for serving as a Consultant for Merz. Dr. Monteith has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Axsome. Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Teva . Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Lundbeck. Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for AAN . Dr. Monteith has received personal compensation in the range of $0-$499 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for AAN. Dr. Monteith has received personal compensation in the range of $0-$499 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for AAN . Dr. Monteith has received personal compensation in the range of $0-$499 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Cephalalgia. The institution of Dr. Monteith has received research support from AbbVie. The institution of Dr. Monteith has received research support from lilly. The institution of Dr. Monteith has received research support from Ipsen. Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving as a 好色先生 with Medscape. Dr. Monteith has received personal compensation in the range of $500-$4,999 for serving as a 好色先生 with Massachusetts Medical Society . Dr. Monteith has a non-compensated relationship as a President Elect with Florida Society of Neurology that is relevant to AAN interests or activities. Dr. Monteith has a non-compensated relationship as a Editorial Board /Board Member with American Migraine Foundation that is relevant to AAN interests or activities. Dr. Monteith has a non-compensated relationship as a Board Member with International Headache Society that is relevant to AAN interests or activities. Dr. Monteith has a non-compensated relationship as a author with Pfizer that is relevant to AAN interests or activities. Dr. Monteith has a non-compensated relationship as a author with Abbvie that is relevant to AAN interests or activities. Dr. Monteith has a non-compensated relationship as a author with Theranica that is relevant to AAN interests or activities.
Monica Verduzco-Gutierrez (UT Health San Antonio) Monica Verduzco-Gutierrez has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Abbvie . Monica Verduzco-Gutierrez has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Ipsen. Monica Verduzco-Gutierrez has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Merz. Monica Verduzco-Gutierrez has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Revance. Monica Verduzco-Gutierrez has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Abbvie. Monica Verduzco-Gutierrez has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Ipsen. Monica Verduzco-Gutierrez has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Merz. Monica Verduzco-Gutierrez has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Piramal. The institution of Monica Verduzco-Gutierrez has received research support from Ipsen. Monica Verduzco-Gutierrez has received publishing royalties from a publication relating to health care.
Annika Ehrlich, DNP, FNP-C, AQH, CNRN (UCSF Headache Center) Ms. Ehrlich has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Abbvie Pharmaceuticals. Ms. Ehrlich has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Theranica. Ms. Ehrlich has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Eli Lilly. Ms. Ehrlich has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Abbvie. Ms. Ehrlich has received personal compensation in the range of $10,000-$49,999 for serving as an officer or member of the Board of Directors for Headache Cooperative of the Pacific. Ms. Ehrlich has received personal compensation in the range of $500-$4,999 for serving as a Meditation teacher with Miles for Migraine. Ms. Ehrlich has a non-compensated relationship as a Working Group Member with Alliance for Patient Access that is relevant to AAN interests or activities. Ms. Ehrlich has a non-compensated relationship as a Board member with Alliance for Headache Disorders Advocacy that is relevant to AAN interests or activities. Ms. Ehrlich has a non-compensated relationship as a Medical reviewer (volunteer) with Migraine Again that is relevant to AAN interests or activities.
Heather Moran, MEd Ms. Director has received personal compensation in the range of $0-$499 for serving as a Patient Advocate Consultant with Lundbeck . Ms. Director has a non-compensated relationship as a Advisory Board Member with Lundbeck Pharmaceuticalas that is relevant to AAN interests or activities. Ms. Director has a non-compensated relationship as a Migraine-MDD Patient Survey Steering Committee with TEVA Pharmaceuticals that is relevant to AAN interests or activities. Ms. Director has a non-compensated relationship as a Patient Advisory Council - Migraine with Axsome Pharmaceuticals that is relevant to AAN interests or activities. Ms. Director has a non-compensated relationship as a Strategic Advisory Board Member with Patient Engagement Medicines Development that is relevant to AAN interests or activities. Ms. Director has a non-compensated relationship as a Author Affiliation with Pfizer that is relevant to AAN interests or activities. Ms. Director has a non-compensated relationship as a Authorship Affiliation with Abbvie that is relevant to AAN interests or activities.
Nina Y. Riggins, MD, FAAN (Headache Center of Excellence) Dr. Riggins has received personal compensation in the range of $500-$4,999 for serving as a Consultant for GLG Gerson Lehrman Group . Dr. Riggins has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Theranica. Dr. Riggins has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Teva. The institution of Dr. Riggins has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Lundbeck. The institution of Dr. Riggins has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Amneal Pharmaceuticals. Dr. Riggins has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for NeurologyLive. The institution of Dr. Riggins has received research support from ElectroCore (GammaCore). The institution of Dr. Riggins has received research support from Miles for Migraine. The institution of Dr. Riggins has received research support from Eli Lilly. Dr. Riggins has received publishing royalties from a publication relating to health care. Dr. Riggins has received publishing royalties from a publication relating to health care. Dr. Riggins has received publishing royalties from a publication relating to health care. Dr. Riggins has a non-compensated relationship as a PI on research study with TheraSpecs that is relevant to AAN interests or activities. Dr. Riggins has a non-compensated relationship as a Advisory Board with NeurologyLive that is relevant to AAN interests or activities. Dr. Riggins has a non-compensated relationship as a Member of the Board with Miles for Migraine that is relevant to AAN interests or activities. Dr. Riggins has a non-compensated relationship as a PI in the study which used sphenocath device with Dolor Technologies that is relevant to AAN interests or activities. Dr. Riggins has a non-compensated relationship as a PI with Theranica that is relevant to AAN interests or activities.
Amaal J. Starling, MD, FAAN (Mayo Clinic) Dr. Starling has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Axsome Therapeutics. Dr. Starling has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Lundbeck. Dr. Starling has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Medscape. Dr. Starling has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Satsuma. Dr. Starling has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Miller Medical. Dr. Starling has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Pfizer. Dr. Starling has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Salvia. Dr. Starling has received personal compensation in the range of $0-$499 for serving as a Consultant for Abbvie. Dr. Starling has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Amneal. Dr. Starling has received personal compensation in the range of $500-$4,999 for serving as a Consultant for eNeura.
Meghan Fajardo, PharmD (Pfizer) Dr. Fajardo has nothing to disclose.
Samantha Sweeney, Other Dr. Sweeney has received personal compensation for serving as an employee of Pfizer. Dr. Sweeney has stock in Pfizer.